Tuesday, December 13, 2011


Hi all, it was a rough weekend, as Hannah hit rock bottom on Friday, and stayed there through Sunday.  Saturday afternoon she had a bad reaction to a blood transfusion. She had received 2 bags of blood and did fine with the first one but at the very end of the second bag she reacted - this is quite common - we were very lucky the last time around and only had a slight reaction to some platelets. She started to get really wheezy and as she was getting a breathing treatment she started to develop an itchy rash all over her body. It cleared up on it's own and was completely gone by morning.

Sunday was a day of rest after the battle Saturday night.  She slept virtually all day.

Monday, the start of a new week, her immune system move off zero and began to climb.  Today brought about higher numbers, so she is getting stronger!! She has been fever free or low fever for 2 days so hopefully they will back off the antibiotics over the next couple of days. She is still pretty congested from a cold and has developed some sores down her throat making it hard to swallow and causing extra mucus (gross). Morphine is wonderful and they have started to administer some to help the throat pain.

As I sit here typing she is pulling out her hair - literally pulling it out. It has started to fall out and once you start pulling it, just like picking s scab you can't stop. Yesterday we had fun with tape and put it on her head and pulled it off, you do weird things when you're bored.

We had good news this morning, her counts (hemoglobin and platelets) are all doing what they're supposed to be doing, rising on their own. This means we MAY be home on Monday the 19th. She has a lumbar puncture on Monday morning and then home after that.

Thank you for your continued prayer and support.


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